Chronic illness, Fatigue, Mobility, Weakness

Things I used to hide

A year and a half ago, I posted these pics of our trip to Enchanted Rock. What I didn’t share was that I couldn’t make it up the hill. My body was so weak and tired. I stopped about a third of the way up. (A third of the way sounds pretty good to me today!)

John and the girls went on ahead. I sat under a tree and watched children and elderly people make their way ahead of me. I was frustrated and I didn’t know what to be frustrated by. Was it my body? My willpower? Was I just a weak person?

Thinking back, I’ve spent most of my life venturing out within very strict confines because of how my body felt. The two-mile jogs I used to be able to take… I could only take them at particular times of day, in certain temperatures, and on a routes by my house so I could get home quickly if I didn’t feel well.

John and the girls continued their adventures. They’d hike, bike, even rock climb. I RARELY went and when I did, I was scared the entire time – scared that my body would give out. He became their adventurer. I was their cuddler. This body of mine was shaping how I interacted with my children, for good and for bad.

I didn’t know why I was struggling then, but I do now, and I can’t tell you how thankful I am for that knowledge. Being diagnosed with POTS, a form of dysautonomia, has been challenging but it has also been liberating. There is peace in knowing the “why.”

There is so much in my life that I haven’t put words to. So much that I have unknowingly coped with and hid from others thinking I was weak, when it turns out I was ill. It’s an amazing gift to find out that what you thought was weakness was actually your strength – that you were overcoming in a way you never knew.

Before this, I had given up the hope of a diagnosis. My plan was to ask God what was wrong with me when I got to the other side. Well, I was lying in bed the other night thinking, “I can’t believe that I finally know what has been crippling my life.” In so many ways, I am on the other side.

Physically, I’m not 100%, but I’m a good 80% (YAY!). I suppose I’m working my way up a hill of a different kind. With my eyes on God, I will keep climbing. The journey is hard. The company is wonderful.

Blessings of Chronic Illness on Instagram

Blessings in your inbox every Sunday

Start your week with a bible verse for reflection, positive quotes, and inspirational articles.

Recent Posts:

Aging – The Quest to Make Gratitude My Mirror

Looking around at the women I knew and saw – it seemed that aging took a stronger hold after 40. Bodies, faces, hair… I began to think that 40 was the magical age when I’d become “old.” 27 days after turning 40, I became so unbelievably sick. Life as I knew it… stopped. Dysautonomia is…

The Truths of Where I Am

I feel stronger and the gratitude I have for this is immeasurable. I am getting better about reading my body and learning my new limitations. My limitations are for my body, not my spirit. I need to rest several times throughout the day to be able to keep going. Once I get dressed, I rest.…

Making space for my new life

In this new season of life, coffee and wine have been moved to the do not consume list. While I’m okay with that, I still miss the idea of what they represented for me: company, friends, comfort, warmth… I think that’s why I’ve been reluctant to tuck away the coffee pot and wine rack. John…

The frienDship fern

I’ve adored this fern for years. I’ve protected it from deer, replanted it as it grew, and sat in its shade as it hung from the porch eave.  Caring for it every morning was part of how I calmed myself. This winter, I was too sick to care for it during the freeze and it…

I didn’t know what was coming, but God did

Five years ago, my life changed. Two of the people I loved the most passed away. My grandfather who helped raise me and my cousin who was only 39. She had five-month-old twins.  Trajedy like that brings clarity. I could see what really mattered and what I needed to change in my life. I was…

One good thing

Finding one good thing can make the world right again. Today, my good thing is very simple—cream of wheat. My stomach has been sick and my food choices, limited.  It’s been comforting to find one warm, soothing thing that I can eat. Would you believe that it’s become my equivalent for coffee and dessert? I’m…

Loading…

Something went wrong. Please refresh the page and/or try again.

Advertisement