I’ve adored this fern for years. I’ve protected it from deer, replanted it as it grew, and sat in its shade as it hung from the porch eave. Caring for it every morning was part of how I calmed myself.
This winter, I was too sick to care for it during the freeze and it was on the brink of death. So, my neighbor fostered the fern until I was strong enough to care for it again.
She delivered it to my porch yesterday, having spent the past few months nursing it back to health.
As I was admiring its new leaves, I thought… this fern is just like me. Not perfect, but strong.
Now, when I see this fern, I see friendship and resilience – and I love it all the more. It’s a tangible reminder of the gifts I’ve been given.
Looking around at the women I knew and saw – it seemed that aging took a stronger hold after 40. Bodies, faces, hair… I began to think that 40 was the magical age when I’d become “old.” 27 days after turning 40, I became so unbelievably sick. Life as I knew it… stopped. Dysautonomia is…
I feel stronger and the gratitude I have for this is immeasurable. I am getting better about reading my body and learning my new limitations. My limitations are for my body, not my spirit. I need to rest several times throughout the day to be able to keep going. Once I get dressed, I rest.…
In this new season of life, coffee and wine have been moved to the do not consume list. While I’m okay with that, I still miss the idea of what they represented for me: company, friends, comfort, warmth… I think that’s why I’ve been reluctant to tuck away the coffee pot and wine rack. John…
Five years ago, my life changed. Two of the people I loved the most passed away. My grandfather who helped raise me and my cousin who was only 39. She had five-month-old twins. Trajedy like that brings clarity. I could see what really mattered and what I needed to change in my life. I was…
Finding one good thing can make the world right again. Today, my good thing is very simple—cream of wheat. My stomach has been sick and my food choices, limited. It’s been comforting to find one warm, soothing thing that I can eat. Would you believe that it’s become my equivalent for coffee and dessert? I’m…
I’ve been feeling a little down lately. I think that’s normal. The world is coming alive again and it emphasizes some of my limitations. I cherish the days when I’m healthy enough to walk through the creek behind our little house. There are so many spots to stop and rest. Usually when I slow down,…
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Five years ago, my life changed. Two of the people I loved the most passed away. My grandfather who helped raise me and my cousin who was only 39. She had five-month-old twins.
Trajedy like that brings clarity. I could see what really mattered and what I needed to change in my life. I was healthy then and the interesting thing is that all of the changes I made, ended up being amazing blessings when I became ill.
I had been working 60-hour weeks. The stress was high and I was missing so much time with my little girls. I resigned. I was going to take a year off but ended up taking on part-time work from home instead. Luckily, I’ve been able to maintain this work even after becoming ill and it allows us the income for all of our necessities.
I joined a church and made the proactive choice to surround myself with good people. These are the people who have shown up in my life since I got sick. They’ve brought food, journals, and kindenss when I needed it most.
We also bought this little house on a pretty piece of land. I was looking for somewhere that felt like a vacation. It’s tiny- two bedrooms and one bathroom, but outside, there’s room to roam. I can take short walks and feel restored… or winded. Living here has been such a blessing while being sick. The view from my bed is lovely and I have lots of little friends to keep me company. Plus, my cousin’s babies (who are five now) live just a few minutes away and I get to love on them for her.
All these decisions have brought me joy during a tough season. I feel like God was lining my path with gifts to get me through.
Retrospectively, don’t we always see how God was navigating things for our good? Even the hardest times, he lined with blessings.
I’ve adored this fern for years. I’ve protected it from deer, replanted it as it grew, and sat in its shade as it hung from the porch eave. Caring for it every morning was part of how I calmed myself. This winter, I was too sick to care for it during the freeze and it…
As a people, we are not who we were pre-COVID-19. I am not who I was pre-dysautonomia diagnosis. I don’t think we would have gone through all of this to remain as we were. As we are re-emerging into new lives and routines, I think it’s worth reevaluating what living should look like. This has…
With the world reopening and me feeling better, our schedules are getting busier again. My new limitations make things confusing to navigate. I want to say yes to taking my children to practices and birthday parties, to visiting with friends and family—but the reality is settling in that I run on a day-to-day basis and…
I have a need to talk about what I’m living and learning right now, a calling maybe. I don’t think living with illness means you dwell in a corner and say that everything is great. I think there can be a helpful honestly here that binds us. I’m often told to be careful with what…
I’m going to be honest about the hard and good stuff… the inklings of fear that creep into our minds; the thoughts we’d rather not have; the allowing of sadness and thanksgiving in the same moment. When I get to leave the house, I’m so excited. Thus far, my outings have mostly been to church,…
With so many recent health fluctuations, I thought I’d share a little about what my daily life looks like right now. The beautiful news is that I’m fairly independent, driving, cooking, cleaning, working, parenting… Am I still sick? Yes, but I’m managing it well. I go slower, but I’m going. I attend less things, but…
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I’ve been feeling a little down lately. I think that’s normal. The world is coming alive again and it emphasizes some of my limitations.
I cherish the days when I’m healthy enough to walk through the creek behind our little house. There are so many spots to stop and rest. Usually when I slow down, I feel like I’m falling behind. Here, I feel like I’m catching up. I see that life is moving all around me and I’ve been afforded a lovely view.
When we can’t move as fast, we seem to stay longer and watch more. It’s where we find ourselves and God.
In some ways, being sick is helping me to catch my breath; eventhough, there are moments when it quite literally takes my breath away.
God made a beauteous garden
With lovely flowers strewn,
But one straight, narrow pathway
That was not overgrown.
And to this beauteous garden
He brought mankind to live,
And said: "To you, my children,
These lovely flowers I give.
Prune ye my vines and fig trees,
With care my flowerets tend,
But keep the pathway open
Your home is at the end."
-Robert Frost
This is the first spring for our little garden house. It was a dream five years in the making. John worked so hard to design and build it. I researched plants and could see everything in my mind’s eye. Yet, in December, I started to feel unwell and grew sicker for the next few months.…
I never expected fellow Christians to be the ones to attack. To imply that I am embracing illness instead of putting my faith in God for healing. To say things like: “Any sickness/disease is from satan. satan is trying to steal your quality of life, to destroy your purpose in life.” “It sounds like your…
A year and a half ago, I posted these pics of our trip to Enchanted Rock. What I didn’t share was that I couldn’t make it up the hill. My body was so weak and tired. I stopped about a third of the way up. (A third of the way sounds pretty good to me…
With chronic illness, you have good and bad days, and you never know how you’ll feel when. It puts a damper on being reliable. As a type A++ personality, this is a huge struggle for me. I’m a super punctual, likes everything just so, don’t flake kinda girl… or at least, I was. This weekend…
Who are you? Your gifts, relationships, the roles you play? Chronic illness (and any trauma really) will rob you of everything on your list at one time or another. It will take all that you thought you were, shatter it, and leave you to rebuild yourself in the light of humility. Go ahead, scratch off…
This weekend, we went back to church for the first time in over a year. It was everything I could have hoped for. The energy of the sanctuary. The joy of seeing our church family. I can’t believe we’ve done without this for a year, and a tough year at that. I’ve been a bit…
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Start your week with a bible verse for reflection, positive quotes, and inspirational articles.
This is the first spring for our little garden house. It was a dream five years in the making. John worked so hard to design and build it. I researched plants and could see everything in my mind’s eye.
Yet, in December, I started to feel unwell and grew sicker for the next few months. Once I understood the full scope of my illness, I knew a spring garden was not going to happen this year. Instead, it’s been left untended since winter. It’s seen snow, weeds, and intermittent showers.
What strikes me is how some of our fall plants have lingered and flourished without care. They’ve run wild beyond their borders and sprouted the loveliest flowers. Ladybugs are combating aphids, and wildflowers and cactus are encroaching upon the garden’s exterior walls.
It reminds me of something my grandfather used to say, “God willing.” When you’d invited him somewhere, his response was always, “God willing.” I’d laugh and knew he’d be there. Now, I better understand what he meant. We’re not in as much control as we’d like to believe. When you think of it, most of us will still have plans and dreams the day we leave this Earth. There will be things we don’t get to finish. We have to lean more deeply into “God willing.”
The loveliness of these surviving plants changed how I want to approach gardening next spring. I want an unkept garden with hardy plants that will do well even when I’m not able to care for them. Plants that surprise me with their strength and beauty. I think that’ll be a good metaphor for life.
Today is a day I have been dreading… John went back to the office. I dropped the girls off at school and came home to a dark house. The electricity was out and to my surprise, it felt comforting. I lit a candle, let the cat inside, and sat with the dog as we watched…
I imagine God asking me, “Would you like an easy and beautiful life where your spirit grows a little, or would you like a challenging life that reshapes how you see the world? Either way, I’ll be with you.” I’m fairly certain that I would have responded, “Easy is good. I can grow a little.”…
The first emotion I used to feel when I woke up was fear. Fear of putting my feet on the ground to see if I could stand. It was the gauge of whether or not I’d have a decent day or if I’d struggle. Well, I’ve recently had a slew of decent and even good…
Being ill changes you. It lights a fire in your soul. More clearly than ever before, you see what’s important, what kind of life you want to live, and who you want to be with. For me, I have very limited energy so I have to be purposeful with it. What surprised me was how…
When I was at my worst with POTS; I went from jogging, to stumbling, to crawling. This song came on the day I ordered my wheelchair. I fell apart into it. I’ve heard it before but never like I do now… “Where feet may fail and fear surrounds me, you never failed and you won’t…
After being told for years that my ailments were anxiety, I became a disbeliever in my own body. I stopped believing in my ability to decipher if I was physically ill or not. I spent the past two decades convincing myself that anxiety was the cause of my dizziness, weakness, heart palpitations, tightness of chest……
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Blessings of Chronic Illness on Instagram
Blessings in your inbox every Sunday
Start your week with a bible verse for reflection, positive quotes, and inspirational articles.