Chronic illness, community, Coping, Fatigue, heart palpitations, Hyper Pots, Hyperadrenergic POTS, Overcoming, Uncategorized

Our life has to be our message

I have a need to talk about what I’m living and learning right now, a calling maybe. I don’t think living with illness means you dwell in a corner and say that everything is great. I think there can be a helpful honestly here that binds us.

I’m often told to be careful with what I say. That my words have power. I believe they do. Yet, I don’t think that means I should preclude the honesty of how hard and beautiful this journey can be.

I pray. I cry. I have fears. I have strength. I am so completely human and yet I am on a path that has been created by God.

Some people want me to speak only healing words over myself so that I can become a testimony. Some people want me to say that I’m fine because the truth makes them uncomfortable. Some people genuinely want to know where I am on this journey.

Y’all, I’m not on the road to having a testimony. Every day that I live must be a testimony – one of devotion, perseverance, faith, surrender, gratitude… one of honesty.

If you ask me how I’m doing; I will tell you. And when I ask you how you’re doing; I hope you’ll tell me. I don’t want to hear what you’re trying to convince yourself of. I want to know exactly where you are so we can walk step in step together.

God didn’t give us the spirits we have so that we could pretend them into something else. Goals, faith, and determination are important. So is a clear view of our gifts in the present moment.

I have to remember that little eyes are watching how I navigate this life.

So, this is how I’m going to do life. I’m going to lean in to the inklings, to the callings, to the hard and beautiful conversations.

I will speak from where my spirit is and pray for guidance and humility. I will be a friend. I will be vulnerable. I will fail. I will try again. And I will always, always love.

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